huntington’s nurse

The Huntington’s disease nurse plans, agrees and delivers high quality care and support to people with Huntington’s disease, their family, carers and persons at risk or affected by Huntington’s disease, and also ensures care is appropriately co-ordinated with other services.

Huntington's disease is a hereditary neurological disorder of the central nervous system that causes progressive degeneration of cells in the brain, slowly impairing a person's ability to walk, think, talk and reason.

Symptoms often appear between the ages of 30 and 50 and develop gradually over months or years. Symptoms begin with short term memory loss or confusion, changes in personality and mood that may include aggressive and antisocial behaviour, as well as clumsiness or uncontrolled muscle movements and rigidity. As the condition progresses, other symptoms of dementia appear, such as loss of rational thought and poor concentration. Involuntary movements, difficulties with speaking and swallowing, weight loss, seizures, depression and anxiety may also occur.

The Huntington’s nurse provides a range of services:

  • co-ordinating people’s care across health and social care teams to meet all of a person’s assessed needs
  • planning, delivery and reviewing of care packages
  • specialist assessment of a person’s needs and risks
  • advice, training, information to medical staff in the care and treatment of people with Huntington’s disease and people at risk from Huntington’s disease
  • liaison within health and social care teams, including carers and voluntary agencies.

How to access the Huntington’s nurse service

The Huntington’s nurse referrals are made via the mental health single point of access , leading to an assessment by the Huntington's nurse.

The nurse is based within the community mental health and memory service team at

Eleanor Centre
21 Eleanor Street
Grimsby
North East Lincolnshire
DN32 9EA

For more information, telephone the Huntington’s nurse: 01472 625832