The Huntington’s disease nurse plans, agrees and delivers high quality care and support to people with Huntington’s disease, their family, carers and persons at risk or affected by Huntington’s disease, and also ensures care is appropriately co-ordinated with other services.
Huntington's disease is a hereditary neurological disorder of the central nervous system that causes progressive degeneration of cells in the brain, slowly impairing a person's ability to walk, think, talk and reason.
Symptoms often appear between the ages of 30 and 50 and develop gradually over months or years. Symptoms begin with short term memory loss or confusion, changes in personality and mood that may include aggressive and antisocial behaviour, as well as clumsiness or uncontrolled muscle movements and rigidity. As the condition progresses, other symptoms of dementia appear, such as loss of rational thought and poor concentration. Involuntary movements, difficulties with speaking and swallowing, weight loss, seizures, depression and anxiety may also occur.
The Huntington’s nurse provides a range of services:
The Huntington’s nurse referrals are made via the mental health single point of access , leading to an assessment by the Huntington's nurse.
The nurse is based within the community mental health and memory service team at Pine Lodge on The Willows Site, Barmouth Drive Grimsby.
For more information, telephone the Huntington’s nurse: 01472 625950